EGL Genetics Blog

Beating the Odds — 35 Years with Trisomy 18

Posted by Danyella Davis on Apr 5, 2017 11:00:00 AM

Thank you to this week's "My Beautiful CHILD" guest blogger, SOFT President Barbara VanHerreweghec, for sharing her daughter's trisomy 18 journey. 

Our story started 35 years ago. We had waited eight years for the birth of our first child.  Just like anyone else carrying a baby, we thought that everything would be perfect. The time finally came for our first child to be born. On May 21st, our little bundle of joy was born, a girl, weighing 4 lbs 8 1/2 ounces. She was adorable.

She was born at a small hometown hospital in Brockport, NY. We spent every minute with her even when they discharged me and said she needed to stay and gain a little weight. After 10 days, we took her home from the hospital. Everyday was a struggle to get in enough food. Her doctor told us he wanted to get her in for genetic testing, but didn't provide the reasoning behind his logic. 

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Topics: trisomy 18, Edwards Syndrome, Support Organization for Trisomy 18, 13

In Memory of Aaron — How You Changed Our Lives 

Posted by Danyella Davis on Mar 29, 2017 11:00:00 AM

Thank you to this month’s blog feature by Leah and David Bultema; David is the Executive Director and Founder of The AaronStrong Foundation.

Hope. Faith. Family. These three things have been our focus and have strengthened tremendously through Aaron’s journey. Although we could've easily chosen a path leading to destruction following the loss of our son, we instead chose a path of recovery. That choice made one of the toughest times of our lives one of the greatest blessings.

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Topics: Down syndrome, aaronstrong foundation, trisomy 18, Trisomy 21, Edwards Syndrome, Aneuploidy

 

 

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