EGL Genetics Blog

The Rare & Undiagnosed Family

Posted by Danyella Davis on Feb 7, 2017 3:00:00 PM

Thank you to this month's "My Beautiful CHILD" guest blogger, Gina Szajnuk, for sharing her family's diagnostic odyssey. 

During the summer of 2014, I co-founded the Rare & Undiagnosed Network (RUN)RUN’s mission is to empower rare and undiagnosed patients and their families with genomic information through community, advocacy, networking and support. RUN is a platform for families to share their journey.

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Topics: My Beautiful CHILD, rare and undiagnosed diseases

 

 

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