EGL Genetics Blog

World Renowned LHON Expert Discusses Clinical Trial

Posted by Danyella Davis on May 26, 2016 11:00:00 AM

Dr. Nancy Newman of the Emory University School of Medicine talks passionately about her expertise

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Topics: LHON, Emory University School of Medicine, clinical trial, healthy vision month

Mother Turned Advocate After Son’s LHON Diagnosis

Posted by Danyella Davis on May 12, 2016 9:00:00 AM

How does a 19-year-old college sophomore go from 20/20 vision to legally blind in 2 months?

 Jeremy Poincenot, a San Diego State University student, received a shocking, life altering diagnosis just months after expressing concern of blurred vision. A diagnosis that set his mother, Lissa Poincenot, on a path of advocacy to connect patients to thought leaders and supply resources and support.

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Topics: Inherited Eye Disorders, LHON



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