EGL Genetics Blog

My Beautiful CHILD: Zachary & Grace

Posted by Eleina Cox on Oct 4, 2016 11:00:00 AM

 

“It was clear to us that our children did not have random birth defects, but some sort of syndrome.” Parents who advocate for their children, especially those who are members of the “My Beautiful CHILD” community, may be all too familiar with this statement. Being aware and keeping track of your child's physical and development health, noticing differences, and having concerns can be understated necessities to parenting.

As you read this compelling story about Zachary and Grace, beautiful siblings diagnosed with a disabling genetic condition, you will be exposed to the difficult turns the diagnostic process can take and how their family has experienced numerous ups and downs. They overcame those obstacles to uncover their diagnostic footprint and discover how love and hope can shape a perfect family.

 

 

 

 

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Topics: Congenital Disorders of Glycosylation, CDG

CDG Care Mission and Purpose: Making a Difference in the CDG Community

Posted by Danyella Davis on Sep 15, 2016 11:00:00 AM

Thanks to Andrea Berarducci, CDG CARE President, Community and Parent Representative for this blog contribution in support of EGL's My Beautiful CHILD campaign.

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Topics: Congenital Disorders of Glycosylation

 

 

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